MDF is excited to introduce “Understanding Myotonic Dystrophy”, a new series of short educational animations designed to educate people living with myotonic dystrophy (DM) and their healthcare providers! Our second animation “Understanding Myotonic Dystrophy – Inheritance of Myotonic Dystrophy Type 1 (DM1)”, explains how DM1 is passed down from generation to generation and highlights the importance of genetic testing.

Drawn to RNA biology, Dr. Bae joined Dr. Auinash Kalsotra’s lab at the University of Illinois for postdoctoral training. Currently, Dr. Bae is working on the project “Investigating the molecular mechanisms of liver dysfunctions in myotonic dystrophy” and optimizing protein quantification assays and exploring DM1 pathologies in the liver, a largely overlooked organ in DM1 research.

Meet 2025 Fellowship Recipient, Emily Davey, BS! Emily Davey was introduced to DM at nine when a family friend's daughter was diagnosed with congenital myotonic dystrophy. She previously volunteered in Dr. Andy Berglund’s lab at SUNY Albany. She now works in Dr. Eric Wang’s lab at the University of Florida, focusing on the CNS impacts of DM and is working on the project, “Uncovering regional and cell-type specific transcriptomic signatures in the DM1 brain”. Inspired by interactions with DM patients and families, Emily Davey aims to pursue a postdoctoral fellowship in DM research and become a senior researcher specializing in CNS mechanisms in DM1.

As we welcome 2025, MDF is filled with hope and excitement for the year ahead! From launching new support programs and resources to hosting the International MDF Conference this May, we're making strides to advance care, connection, and hope for the DM community. Read a special message from our CEO, Dr. Tanya Stevenson!